Resources
Development of the content of the Sarcoma Assessment Measure (SAM)
Development of the content of the Sarcoma Assessment Measure (SAM) PROMS Annual UK Research Conference, Leeds, 13th June
The Five ‘Es’ of Holistic Care for Adolescents and Young Adults with Cancer
The Five ‘Es’ of Holistic Care for Adolescents and Young Adults with Cancer Qualitative Health Research Network Conference, London, 21-22nd…
Working With Young People to Creatively Disseminate a National PROMS Study
Working with young people to creatively disseminate a national PROMS study – developing ‘There is a Light: BRIGHTLIGHT’ PROMS Annual…
A Critical Review of the Impact of Sarcoma on Psychosocial Wellbeing
A critical review of the impact of sarcoma on psychosocial wellbeing Sarcoma
Description of the BRIGHTLIGHT Cohort: the Evaluation of Teenage and Young Adult Cancer Services in England
Description of the BRIGHTLIGHT cohort: the evaluation of teenage and young adult cancer services in England BMJ Open
A Qualitative Study Exploring Patients Experiences of Being Diagnosed and Living with Primary Bone Cancer
A qualitative study exploring patients experiences of being diagnosed and living with primary bone cancer BMJ Open
How do Healthcare Professionals Perceive Online Information and Support for Young People with Cancer in the UK?
How do healthcare professionals perceive online information and support for young people with cancer in the United Kingdom (UK)? Adolescent…
The Culture of Young People’s Cancer Care: A Narrative Review and Synthesis of the UK Literature
The culture of young people’s cancer care: A narrative review and synthesis of the UK literature European Journal of Cancer…
Understanding Care When a Cure is Not Likely for Young Adults Who Face Cancer
Understanding care a when cure is not likely for young adults who face cancer: a realist analysis of data from…
Infographic Presenting an Overview of the Findings of the ‘Delphi Survey’
Infographic presenting an overview of the findings of the ‘Delphi survey’: Delphi Study Infographic
Presenting Cancer Symptoms and Diagnostic Timeliness Among teenagers and Young Adults: Findings From the BRIGHTLIGHT Cohort
Presenting cancer symptoms and diagnostic timeliness among teenagers and young adults: findings from the BRIGHTLIGHT cohort 3rd Global AYA Cancer…
‘Does That Mean That Cancer Patients Can’t Have Sex?’ – Adolescent and Young Adults’ Support and Information Preferences
‘Does that mean that cancer patients can’t have sex?’ – Adolescent and young adults’ support and information preferences 3rd Global…
Involving Young People in BRIGHTLIGHT From Study Inception to Secondary Data Analysis: Reflections on 10 Years of User Involvement
Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: reflections on 10 years of user involvement Research…
Challenges in Developing Sarcoma-specific Tools
Challenges in developing sarcoma-specific tools (workshop). British Sarcoma Group, Birmingham, 27th February
“No Peppa Pig!”: Conceptualising Age-appropriate Care for Teenagers and Young Adults With Cancer
“No Peppa Pig!”: Conceptualising age-appropriate care for teenagers and young adults with cancer RCN International Research Society Conference, Birmingham, 16-18th…
“I Just Hate My Face. It’s So Different, and Because it Doesn’t Work Properly”– Experiences of Patients With Head and Neck Sarcoma
“I just hate my face. It’s so different, and because it doesn’t work properly” – experiences of patients with head…
SAM – Sarcoma Assessment Measure Phase 1: Patient Experience
SAM – Sarcoma Assessment Measure Phase 1: Patient experience Bone Cancer Research Trust Conference, Birmingham, 23rd June
Experiences of Patients With Bone Cancer: the Role of Illness and Development Trajectories, Healthcare Professionals, Social Support and Coping Strategies
Experiences of patients with bone cancer: the role of illness and development trajectories, healthcare professionals, social support and coping strategies…
Online Information and Support Needs of Young People With Cancer: A Participatory Action Research Study
Online information and support needs of young people with cancer: A participatory action research study Adolescent Health, Medicine and Therapeutics
Conceptualising Age-appropriate Care for Teenagers and Young Adults With Cancer: a Qualitative Mixed Methods Study
Conceptualising age-appropriate care for teenagers and young adults with cancer: a qualitative mixed methods study Adolescent Medicine Health and Therapeutics