Resources
“Am I Going to Be Told It’s Come Back?” Experiences of Fear of Recurrence in Sarcoma Patients
Vindrola C, Taylor RM, Fern L, Whelan J, Gerrand C, Onasanya M, Storey L, Windsor R, Petrella A, Wells M,…
Development of a Sarcoma-specific Fear of Recurrence Intervention: Reassure me Feasibility Protocol
Taylor RM, Storey L, Windsor R, Petrella A, Onasanya M, Wells M, Vindrola C, Fern L, Gerrand C, Whelan J,…
Top Tips for Developing an Aya Research Programme
Taylor RM ‘Top tips for developing an AYA research programme‘ (keynote lecture). AYA Survivorship Symposium: Caring for the Future. Princess…
Aya Survivorship Symposium: Caring for the Future
Taylor RM, Fern LA, Barber JA, Alvarez-Galvez J, Feltbower RG, Lea S, Martins A, Morris S, Hooker L, Gibson F,…
Holistic Competence
Lea S, Gibson F, Taylor RM ‘ ‘Holistic competence’: how is it developed and shared by nurses caring for adolescents…
Processes Of Care and Survival Associated with Treatment In Specialist Teenage and Young Adult Cancer Centres: the Results of a Brightlight Cohort Study
Fern LA, Taylor RM, Barber JA, Alvarez-Galvez J, Feltbower R, Lea S, Martins A, Morris S, Hooker L, Gibson F,…
Psychological Adaptation and Recovery in Youth with Sarcoma: a Qualitative Study with Practical Implications for Clinical Care and Research
Kosir U, Bowes L, Gerrand C, Windsor R, Onasanya M, Taylor RM, Martins A (2020) ‘Psychological adaptation and recovery in…
Specialist Age-appropriate Care and Quality of Life Outcomes in a Longitudinal Cohort of Teenagers and Young Adults: the Brightlight Study
Taylor RM, Fern LA, Barber JA, Alvarez-Galvez J, Feltbower R, Lea S, Martins A, Morris S, Hooker L, Gibson F,…
The Support and Information Needs of Young People with Cancer when Active Treatment Ends
Lea S, Martins A, Fern LA, Bassett M, Cable M, Doig G, Morgan S, Soanes L, Whelan M, Taylor RM…
Brightlight Researchers As ‘dramaturgs’: Creating There Is a Light from Complex Research Data
Taylor RM. Lobel B, Thompson K, Onshila A, Croasdale M, Whelan JS, Fern LA (2020) ‘BRIGHTLIGHT researchers as ‘dramaturgs’: creating…
Self-reported Symptoms and Timeliness of Help-seeking Among Adolescents and Young Adults with Cancer
Koo MM, Lyratzopoulos G, Abel GA, Taylor RM, Barber J, Gibson F, Whelan J, Fern LA (2020) ‘Self-reported presenting symptoms…
Developing the Content of the Sarcoma Assessment Measure (sam): Using Experience to Measure Outcome
Martins A, Whelan JS, Bennister L, Fern LA, Gerrand C, Onasanya M, Storey L, Wells M, Windsor R, Woodford J,…
Exploring Young People’s Experience Of Ending Active Cancer Treatment
Lea S, Martins A, Bassett M, Cable M, Doig G, Fern LA, Morgan S, Smith S, Soanes L, Whelan M,…
‘My Identity Had Just Been Completely Devastated’
‘My identity had just been completely devastated’ – experiences of adolescent and young adults with sarcoma Qualitative Health Research Network…
How do Healthcare Professionals Perceive Online Information and Support for Young People With Cancer in the UK?
How do healthcare professionals perceive online information and support for young people with cancer in the United Kingdom (UK)? Qualitative…
Experiences of Teenagers and Young Adults with Sarcoma
A qualitative exploration of the experiences of teenagers and young adults with sarcoma British Sarcoma Group (BSG) Annual Conference, London,…
Measuring what Matters
Measuring what matters: developing the content of the Sarcoma Assessment Measure (SAM) British Sarcoma Group (BSG) Annual Conference, London, 27th-28th…
The Role of Professional Expertise and Support in Patients’ Experience
“The Clinical Nurse Specialist was really a stable point for me to go to for any sort of information or…
Identifying the Clinical Utility of SAM
Interactive workshop with the delegates of the NSF to identify the clinical utility of SAM British Sarcoma Group (BSG) Annual…
SAM: Capturing Experience
SAM: capturing experience to measure outcome (invited speaker) British Psychosocial Oncology Society, Chester, 1st March