Poster presentations
“Am I Going to Be Told It’s Come Back?” Experiences of Fear of Recurrence in Sarcoma Patients
Vindrola C, Taylor RM, Fern L, Whelan J, Gerrand C, Onasanya M, Storey L, Windsor R, Petrella A, Wells M,…
Development of a Sarcoma-specific Fear of Recurrence Intervention: Reassure me Feasibility Protocol
Taylor RM, Storey L, Windsor R, Petrella A, Onasanya M, Wells M, Vindrola C, Fern L, Gerrand C, Whelan J,…
‘My Identity Had Just Been Completely Devastated’
‘My identity had just been completely devastated’ – experiences of adolescent and young adults with sarcoma Qualitative Health Research Network…
How do Healthcare Professionals Perceive Online Information and Support for Young People With Cancer in the UK?
How do healthcare professionals perceive online information and support for young people with cancer in the United Kingdom (UK)? Qualitative…
Presenting Cancer Symptoms and Diagnostic Timeliness Among teenagers and Young Adults: Findings From the BRIGHTLIGHT Cohort
Presenting cancer symptoms and diagnostic timeliness among teenagers and young adults: findings from the BRIGHTLIGHT cohort 3rd Global AYA Cancer…
‘Does That Mean That Cancer Patients Can’t Have Sex?’ – Adolescent and Young Adults’ Support and Information Preferences
‘Does that mean that cancer patients can’t have sex?’ – Adolescent and young adults’ support and information preferences 3rd Global…
“I Just Hate My Face. It’s So Different, and Because it Doesn’t Work Properly”– Experiences of Patients With Head and Neck Sarcoma
“I just hate my face. It’s so different, and because it doesn’t work properly” – experiences of patients with head…
Experiences of Patients With Bone Cancer: the Role of Illness and Development Trajectories, Healthcare Professionals, Social Support and Coping Strategies
Experiences of patients with bone cancer: the role of illness and development trajectories, healthcare professionals, social support and coping strategies…
“Why Do We Need SAM”? A Narrative Review of the Impact of Sarcoma on Psychosocial Wellbeing
“Why do we need SAM”? A narrative review of the impact of sarcoma on psychosocial wellbeing. British Sarcoma Group Annual…
A National Survey of Carers of Teenagers and Young Adults With Cancer Unmet Information and Support Needs
A national survey of carers of teenagers and young adults with cancer unmet information and support needs. British Psychosocial Oncology…
The Value of Clinical Supervision Role in Qualitative Research Practice
The value of clinical supervision role in qualitative research practice – case study analysis. British Psychosocial Oncology Society Conference, Southampton,…
Phase 1 in Developing a Sarcoma-Specific Patient-Reported Outcome Measure in the UK: Exploring Patient’s Experiences
Phase 1 in developing a sarcoma-specific patient-reported outcome measure in the UK: exploring patient’s experiences European Musculo-Skeletal Oncology Society (ESMOS)…
Advancing Practice Using Patient-Reported Outcome Measures: A National Collaboration to Develop SAM
Advancing practice using patient-reported outcome measures: A national collaboration to develop SAM RCN International Research Society Conference, Birmingham, 16-18th April
Do Residential Weekends For Young People With Cancer Add Value?
Do residential weekends for young people with cancer add value? Interim analysis of a two day residential weekend in the…
‘Does Patient and Public Involvement (PPI) With Young People Add Value?’
‘Does Patient and Public Involvement (PPI) with young people add value?’ Ten years of PPI, the BRIGHTLIGHT experience The 2nd…
Decision Making and Actions Driving Online Information and Support Seeking for Young People With Cancer
Decision making and actions driving online information and support seeking for young people with cancer The 2nd Global Adolescent and…
Conceptualising Age-Appropriate Care For Teenagers and Young Adults With Cancer
Conceptualising age-appropriate care for teenagers and young adults with cancer The 2nd Global Adolescent and Young Adult Cancer Congress, Atlanta,…
Let’s Play Twister™! Novel Methods to Facilitate Understanding of Complex Research Methods and Generate Secondary Research Hypotheses With Young People
Lets play Twister™! Novel methods to facilitate understanding of complex research methods and generate secondary research hypotheses with young people…
Do Residential Weekends For Young People With Cancer Add Value? Perceptions of Carers/Significant Others
Do residential weekends for young people with cancer add value? Perceptions of carers/significant others The 2nd Global Adolescent and Young…
Information and Support Needs of Carers: Do Specialist Cancer Services For Adolescents and Young Adults Add Value?
Information and support needs of carers: Do specialist cancer services for adolescents and young adults add value? The 2nd Global…