Resources

There is a Light: BRIGHTLIGHT – working with young people to create impactful dissemination TYAC Annual Conference, Birmingham, September 11th-12th 

The support needs of young people at the end of active cancer treatment 3rd Global AYA Cancer Congress, Sydney, Australia…

Healthcare professional perceptions of online information and support for young people with cancer in the United Kingdom 3rd Global AYA…

Issues experienced and support provided to adolescents and young adults at the end of active treatment for cancer: A rapid…

Measuring quality of life in young people with cancer (invited presentation) TYAC Annual Conference, Birmingham, 11-12th September

The challenge of measuring teenage and young adult experience of cancer in a longitudinal survey (symposium presentation) RCN International Research…

Sustained improvements in self-esteem, emotional functioning, social functioning and body image one year after attending the residential weekend ‘Find Your…

Transitioning Adolescent and Young Adult cancer care research out of its adolescence (Editorial) European Journal of Cancer Care

Enhancing accrual to clinical trials of adolescents and young adults with cancer (invited review) Pediatric Blood and Cancer

Working on “Quality of Life (QoL)” for sarcoma patients: Development of SAM (Sarcoma Assessment Measure) 8th SPAEN Annual Conference, Milan,…

Quality of Life and PROMs Plenary: SAM – a Sarcoma specific QoL tool (Plenary session) Challenges in developing sarcoma-specific tools…

“Why do we need SAM”? A narrative review of the impact of sarcoma on psychosocial wellbeing. British Sarcoma Group Annual…

A national survey of carers of teenagers and young adults with cancer unmet information and support needs. British Psychosocial Oncology…

Exploring patient experiences of being diagnosed, treated and living with sarcoma – Phase 1 in developing a sarcoma-specific patient-reported outcome…

A national collaboration to develop a sarcoma-specific patient report outcome measure: Phase 1 – Exploring patient experiences. British Sarcoma Group…

The value of clinical supervision role in qualitative research practice – case study analysis. British Psychosocial Oncology Society Conference, Southampton,…

Evaluation of Patient-Reported Outcome Protocol Content and Reporting in UK Cancer Clinical Trials: The EPiC study qualitative protocol. BMJ Open

Diagnostic timeliness in teenagers and young adults with cancer: Cross-sectional findings from the BRIGHTLIGHT Cohort Lancet Child and Adolescent Health

Sex, body image and relationships: a BRIGHTLIGHT workshop on information and support needs of adolescents and young adults. Journal of…

Phase 1 in developing a sarcoma-specific patient-reported outcome measure in the UK: exploring patient’s experiences European Musculo-Skeletal Oncology Society (ESMOS)…