2019
‘My Identity Had Just Been Completely Devastated’
‘My identity had just been completely devastated’ – experiences of adolescent and young adults with sarcoma Qualitative Health Research Network…
How do Healthcare Professionals Perceive Online Information and Support for Young People With Cancer in the UK?
How do healthcare professionals perceive online information and support for young people with cancer in the United Kingdom (UK)? Qualitative…
Experiences of Teenagers and Young Adults with Sarcoma
A qualitative exploration of the experiences of teenagers and young adults with sarcoma British Sarcoma Group (BSG) Annual Conference, London,…
Measuring what Matters
Measuring what matters: developing the content of the Sarcoma Assessment Measure (SAM) British Sarcoma Group (BSG) Annual Conference, London, 27th-28th…
The Role of Professional Expertise and Support in Patients’ Experience
“The Clinical Nurse Specialist was really a stable point for me to go to for any sort of information or…
Identifying the Clinical Utility of SAM
Interactive workshop with the delegates of the NSF to identify the clinical utility of SAM British Sarcoma Group (BSG) Annual…
SAM: Capturing Experience
SAM: capturing experience to measure outcome (invited speaker) British Psychosocial Oncology Society, Chester, 1st March
Development of the content of the Sarcoma Assessment Measure (SAM)
Development of the content of the Sarcoma Assessment Measure (SAM) PROMS Annual UK Research Conference, Leeds, 13th June
The Five ‘Es’ of Holistic Care for Adolescents and Young Adults with Cancer
The Five ‘Es’ of Holistic Care for Adolescents and Young Adults with Cancer Qualitative Health Research Network Conference, London, 21-22nd…
Working With Young People to Creatively Disseminate a National PROMS Study
Working with young people to creatively disseminate a national PROMS study – developing ‘There is a Light: BRIGHTLIGHT’ PROMS Annual…
A Critical Review of the Impact of Sarcoma on Psychosocial Wellbeing
A critical review of the impact of sarcoma on psychosocial wellbeing Sarcoma
Description of the BRIGHTLIGHT Cohort: the Evaluation of Teenage and Young Adult Cancer Services in England
Description of the BRIGHTLIGHT cohort: the evaluation of teenage and young adult cancer services in England BMJ Open
A Qualitative Study Exploring Patients Experiences of Being Diagnosed and Living with Primary Bone Cancer
A qualitative study exploring patients experiences of being diagnosed and living with primary bone cancer BMJ Open
How do Healthcare Professionals Perceive Online Information and Support for Young People with Cancer in the UK?
How do healthcare professionals perceive online information and support for young people with cancer in the United Kingdom (UK)? Adolescent…
The Culture of Young People’s Cancer Care: A Narrative Review and Synthesis of the UK Literature
The culture of young people’s cancer care: A narrative review and synthesis of the UK literature European Journal of Cancer…
Understanding Care When a Cure is Not Likely for Young Adults Who Face Cancer
Understanding care a when cure is not likely for young adults who face cancer: a realist analysis of data from…
Infographic Presenting an Overview of the Findings of the ‘Delphi Survey’
Infographic presenting an overview of the findings of the ‘Delphi survey’: Delphi Study Infographic