Since the early feasibility work the team have proudly published information about BRIGHTLIGHT to inform researchers and those take part in the studies of the work and emerging findings.
This section of our website is designed to help you find the resources and research you are looking for by order of year. If you would like copies of any publications please download using the link.
Journal Publications
Thinking outside of the box: a scoping exercise of the characteristics of professionals working in teenage and young adult cancer care.
European Journal of Cancer Care
Conference Presentations
BRIGHTLIGHT Study- The 2012 Cancer Cohort Study.
TYA Care South West, Exeter
Teenage and Young Adult Cancer Care; who, where and what’?
Centre for Nurse and Midwife Led Research Conference, London
Development of a patient-reported outcome measure for TYA with cancer: the BRIGHTLIGHT survey.
TYAC Spring Education Day, Nottingham
Steps in the development of a patient-reported outcome measure for teenage and young adults with cancer: the BRIGHTLIGHT survey.
International Society of Paediatric Oncology Congress, London
The role of feasibility and scoping studies in the development of the programme grant: Does specialist TYA cancer care improve outcome?
Centre for Nurse and Midwife Led Research Conference, London
Poster Presentations
‘It’s all in the name’, branding a longitudinal cohort study with young people: BRIGHTLIGHT.
National Cancer Intelligence Network Conference, Liverpool
TYAC Spring Education Day, Nottingham
Other Outputs
No Documents Found
Journal Publications
Teenage and young adult experiences of cancer care in England- the BRIGHTLIGHT study
Cancer Nursing
Developing a conceptual model of teenage and young adult experiences of cancer through meta-synthesis.
International Journal of Nursing Studies
Conference Presentations
A multi-faceted approach to collaboration: The BRIGHTLIGHT Experience.
Centre for Nursing and Midwifery: Research in Clinical Practice Conference, London
BRIGHTLIGHT: Emerging results
Teenagers and Young Adults with cancer -Winter Education Day Conference, Leeds
Poster Presentations
The 7th ‘D’: Don’t decide for me.
TYAC Winter Education Day, Leeds
Other Outputs
Issue 1: Autumn 2013
Issue 1: Autumn 2013
Journal Publications
No Documents Found
Conference Presentations
Sanyya, M and Beale, Z on behalf of the YAP. BRIGHTLIGHT – Find Your Sense of Tumour Centre Parc
Teenagers, Young Adults and Access to Research: perspective from policy, participants and researchers
RCN International Research Society Conference, Glasgow, Scotland
Poster Presentations
Empowering young people to participate in research: young people’s views about research access and participation.
NCIN Conference, Birmingham
Other Outputs
Mapping teenage and young adult cancer services in England. Final Report
Version 2.1, February
Version 1.5, July
Issue 2: Winter 2014
Issue 1: Summer 2014
Journal Publications
Novel participatory methods of involving patients in research: naming and branding a longitudinal study, BRIGHTLIGHT.
BMC Medical Research Methodology.
Perspectives: A newly-qualified nurse’s experience of starting a clinical academic career.
Journal of Research in Nursing
Development and validation of the BRIGHTLIGHT Survey, a patient-reported experience measure for young people with cancer.
Health and Quality of Life Outcomes.
Conference Presentations
Professional competence for working with teenagers and young adults with cancer – consensus and dissension revealed in BRIGHTLIGHT
International Society of Paediatric Oncology, South Africa
Defining healthcare professional competence for working with teenagers and young adults with cancer – a BRIGHTLIGHT study
Royal College of Paediatrics and Child Health Conference, Birmingham
Poster Presentations
The challenges and reality of patient and public involvement with teenagers and young adults.
RCN International Research Society Conference, Nottingham
Starting out on a clinical-academic pathway: the experience of a newly-qualified nurse
Royal College of Paediatrics and Child Health Conference, Birmingham
Other Outputs
Autumn
Issue 3: Spring
Issue 3: Summer
Journal Publications
A participatory study of teenagers and young adults’ views on access and participation in cancer research.
European Journal of Oncology
Direct access to potential research participants for a cohort study using a confidentiality waiver included in UK National Health Service legal statutes.
British Medical Journal
Mapping Adolescent Cancer Services: How Do Young People, Their Families, and Staff Describe Specialized Cancer Care in England?
Cancer Nursing
Modified international e-Delphi survey to define healthcare professional competencies for working with teenagers and young adults with cancer
British Medical Journal
Psychosocial interventions for adolescents and young adults diagnosed with cancer during adolescence: a critical review
Journal of Adolescent and Young Adult Oncology
Conference Presentations
“Hospice Scares the Life Out of Me”: Breaking Down Barriers to Communication with Young Adults with Terminal Cancer
21st International Congress on Palliative Care, Montreal, Canada
The BRIGHTLIGHT STUDY; Using patient reports and treatment data to evaluate the effectiveness of AYA services in the UK
UICC World Cancer Congress, Paris, France
‘It was like having a big sleepover with our chemo bags on’: exploring the relationship between physical and social hospital environments
1st Global AYA Cancer Congress, Edinburgh
Poster Presentations
What are the barriers to recruiting young people with cancer to research?
1st Global AYA Cancer Congress, Edinburgh
Young People with Cancer Peer-To-Peer Support Intervention: Process Evaluation of a Two Day Residential Conference
International Society of Paediatric Oncology SIOP Congress, Dublin, Ireland
Other Outputs
Summer
Journal Publications
Experiences and preferences for end of life care for young adults with cancer and their informal carers: a narrative synthesis
Journal of Adolescent and Young Adult Oncology (early view)
Optimising a strategy with young people to retain young people in a longitudinal cohort study: BRIGHTLIGHT
Journal of Adolescent and Young Adult Oncology (early view)
Being normal, not vulnerable – process evaluation of a two-day conference for teenagers and young people with cancer.
BMJ Open (in press)
Conference Presentations
Participatory research: using board games to guide secondary analysis of big data
RCN International Research Society Conference, Oxford
Poster Presentations
No Documents Found
Other Outputs
March 2017
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