Resources

Since the early feasibility work the team have proudly published information about BRIGHTLIGHT to inform researchers and those take part in the studies of the work and emerging findings. 

This section of our website is designed to help you find the resources and research you are looking for by order of year. If you would like copies of any publications please download using the link.

2012

Resources

Journal Publications

Thinking outside of the box: a scoping exercise of the characteristics of professionals working in teenage and young adult cancer care.

European Journal of Cancer Care

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Conference Presentations

BRIGHTLIGHT Study- The 2012 Cancer Cohort Study.

TYA Care South West, Exeter

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Teenage and Young Adult Cancer Care; who, where and what’?

Centre for Nurse and Midwife Led Research Conference, London

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Development of a patient-reported outcome measure for TYA with cancer: the BRIGHTLIGHT survey.

TYAC Spring Education Day, Nottingham 

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Steps in the development of a patient-reported outcome measure for teenage and young adults with cancer: the BRIGHTLIGHT survey.

International Society of Paediatric Oncology Congress, London

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The role of feasibility and scoping studies in the development of the programme grant: Does specialist TYA cancer care improve outcome?

Centre for Nurse and Midwife Led Research Conference, London

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Poster Presentations

 ‘It’s all in the name’, branding a longitudinal cohort study with young people: BRIGHTLIGHT.

National Cancer Intelligence Network Conference, Liverpool 

TYAC Spring Education Day, Nottingham

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Other Outputs

No Documents Found

2013

Resources

Journal Publications

Teenage and young adult experiences of cancer care in England- the BRIGHTLIGHT study

Cancer Nursing

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Developing a conceptual model of teenage and young adult experiences of cancer through meta-synthesis.

International Journal of Nursing Studies

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Conference Presentations

A multi-faceted approach to collaboration: The BRIGHTLIGHT Experience.

Centre for Nursing and Midwifery: Research in Clinical Practice Conference, London

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BRIGHTLIGHT: Emerging results

Teenagers and Young Adults with cancer -Winter Education Day Conference, Leeds

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Poster Presentations

The 7th ‘D’: Don’t decide for me.

TYAC Winter Education Day, Leeds

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Other Outputs

Newsletter: Healthcare Professionals

Issue 1: Autumn 2013

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Newsletter: Young People

Issue 1: Autumn 2013

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2014

Resources

Journal Publications

No Documents Found

Conference Presentations

Sanyya, M and Beale, Z on behalf of the YAP. BRIGHTLIGHT – Find Your Sense of Tumour Centre Parc

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Teenagers, Young Adults and Access to Research: perspective from policy, participants and researchers

RCN International Research Society Conference, Glasgow, Scotland

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Poster Presentations

Empowering young people to participate in research: young people’s views about research access and participation.

NCIN Conference, Birmingham

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Other Outputs

The BRIGHTLIGHT Directory of Care

Mapping teenage and young adult cancer services in England. Final Report

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Delphi Study Protocol

Version 2.1, February 

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Companion Study Policy

Version 1.5, July 

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Newsletter: Healthcare Professionals

Issue 2: Winter 2014

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Newsletter: Young People

Issue 1: Summer 2014

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2015

Resources

Journal Publications

Novel participatory methods of involving patients in research: naming and branding a longitudinal study, BRIGHTLIGHT.

BMC Medical Research Methodology.

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Perspectives: A newly-qualified nurse’s experience of starting a clinical academic career.

Journal of Research in Nursing

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Development and validation of the BRIGHTLIGHT Survey, a patient-reported experience measure for young people with cancer.

Health and Quality of Life Outcomes.

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Conference Presentations

Professional competence for working with teenagers and young adults with cancer – consensus and dissension revealed in BRIGHTLIGHT 

International Society of Paediatric Oncology, South Africa

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Defining healthcare professional competence for working with teenagers and young adults with cancer – a BRIGHTLIGHT study

Royal College of Paediatrics and Child Health Conference, Birmingham

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Poster Presentations

The challenges and reality of patient and public involvement with teenagers and young adults.

RCN International Research Society Conference, Nottingham

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Starting out on a clinical-academic pathway: the experience of a newly-qualified nurse

Royal College of Paediatrics and Child Health Conference, Birmingham

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Other Outputs

Newsletter- Young Person

Autumn

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Newsletter: Healthcare Professionals

Issue 3: Spring

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Newsletter: Young People

Issue 3: Summer 

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2016

Resources

Journal Publications

A participatory study of teenagers and young adults’ views on access and participation in cancer research.

European Journal of Oncology

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Direct access to potential research participants for a cohort study using a confidentiality waiver included in UK National Health Service legal statutes.

British Medical Journal

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Mapping Adolescent Cancer Services: How Do Young People, Their Families, and Staff Describe Specialized Cancer Care in England?

Cancer Nursing

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Modified international e-Delphi survey to define healthcare professional competencies for working with teenagers and young adults with cancer

British Medical Journal

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Psychosocial interventions for adolescents and young adults diagnosed with cancer during adolescence: a critical review

Journal of Adolescent and Young Adult Oncology

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Conference Presentations

“Hospice Scares the Life Out of Me”: Breaking Down Barriers to Communication with Young Adults with Terminal Cancer

21st International Congress on Palliative Care, Montreal, Canada

The BRIGHTLIGHT STUDY; Using patient reports and treatment data to evaluate the effectiveness of AYA services in the UK

UICC World Cancer Congress, Paris, France

‘It was like having a big sleepover with our chemo bags on’: exploring the relationship between physical and social hospital environments

1st Global AYA Cancer Congress, Edinburgh

 

Poster Presentations

What are the barriers to recruiting young people with cancer to research?

1st Global AYA Cancer Congress, Edinburgh

Young People with Cancer Peer-To-Peer Support Intervention: Process Evaluation of a Two Day Residential Conference

International Society of Paediatric Oncology SIOP Congress, Dublin, Ireland

Other Outputs

Newsletter: Young People

Summer

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2017

Resources

Journal Publications

Experiences and preferences for end of life care for young adults with cancer and their informal carers: a narrative synthesis

Journal of Adolescent and Young Adult Oncology (early view)

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Optimising a strategy with young people to retain young people in a longitudinal cohort study: BRIGHTLIGHT

Journal of Adolescent and Young Adult Oncology (early view)

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Being normal, not vulnerable – process evaluation of a two-day conference for teenagers and young people with cancer.

BMJ Open (in press)

Conference Presentations

Participatory research: using board games to guide secondary analysis of big data

RCN International Research Society Conference, Oxford

Poster Presentations

No Documents Found

Other Outputs

NEWSLETTER: HEALTHCARE PROFESSIONALS

March 2017

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©2017 This website presents independent research funded by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research Programme (Grant Reference Number RP-PG-1209-10013). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.
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