Since the early feasibility work the team have proudly published information about BRIGHTLIGHT to inform researchers and those take part in the studies of the work and emerging findings.
This section of our website is designed to help you find the resources and research you are looking for by order of year. If you would like copies of any publications please download using the link, or contact us if it is not available on the website.
Here we also share with you the outputs of our affiliated studies and research collaborations.
Journal Publications
No Documents Found
Conference Presentations
Sanyya, M and Beale, Z on behalf of the YAP. BRIGHTLIGHT – Find Your Sense of Tumour Centre Parc
Teenagers, Young Adults and Access to Research: perspective from policy, participants and researchers
RCN International Research Society Conference, Glasgow, Scotland
Poster Presentations
Empowering young people to participate in research: young people’s views about research access and participation.
NCIN Conference, Birmingham
Other Outputs
Mapping teenage and young adult cancer services in England. Final Report
Version 2.1, February
Version 1.5, July
Issue 2: Winter 2014
Issue 1: Summer 2014
Journal Publications
Novel participatory methods of involving patients in research: naming and branding a longitudinal study, BRIGHTLIGHT.
BMC Medical Research Methodology.
Perspectives: A newly-qualified nurse’s experience of starting a clinical academic career.
Journal of Research in Nursing
Development and validation of the BRIGHTLIGHT Survey, a patient-reported experience measure for young people with cancer.
Health and Quality of Life Outcomes.
Conference Presentations
Professional competence for working with teenagers and young adults with cancer – consensus and dissension revealed in BRIGHTLIGHT
International Society of Paediatric Oncology, South Africa
Defining healthcare professional competence for working with teenagers and young adults with cancer – a BRIGHTLIGHT study
Royal College of Paediatrics and Child Health Conference, Birmingham
Poster Presentations
The challenges and reality of patient and public involvement with teenagers and young adults.
RCN International Research Society Conference, Nottingham
Starting out on a clinical-academic pathway: the experience of a newly-qualified nurse
Royal College of Paediatrics and Child Health Conference, Birmingham
Other Outputs
Autumn
Issue 3: Spring
Issue 3: Summer
Journal Publications
A participatory study of teenagers and young adults’ views on access and participation in cancer research.
European Journal of Oncology
Direct access to potential research participants for a cohort study using a confidentiality waiver included in UK National Health Service legal statutes.
British Medical Journal
Mapping Adolescent Cancer Services: How Do Young People, Their Families, and Staff Describe Specialized Cancer Care in England?
Cancer Nursing
Modified international e-Delphi survey to define healthcare professional competencies for working with teenagers and young adults with cancer
British Medical Journal
Psychosocial interventions for adolescents and young adults diagnosed with cancer during adolescence: a critical review
Journal of Adolescent and Young Adult Oncology
Conference Presentations
“Hospice Scares the Life Out of Me”: Breaking Down Barriers to Communication with Young Adults with Terminal Cancer
21st International Congress on Palliative Care, Montreal, Canada
The BRIGHTLIGHT STUDY; Using patient reports and treatment data to evaluate the effectiveness of AYA services in the UK
UICC World Cancer Congress, Paris, France
‘It was like having a big sleepover with our chemo bags on’: exploring the relationship between physical and social hospital environments
1st Global AYA Cancer Congress, Edinburgh
Poster Presentations
What are the barriers to recruiting young people with cancer to research?
1st Global AYA Cancer Congress, Edinburgh
Young People with Cancer Peer-To-Peer Support Intervention: Process Evaluation of a Two Day Residential Conference
International Society of Paediatric Oncology SIOP Congress, Dublin, Ireland
Other Outputs
Summer
Journal Publications
Qualitative study to understand the barriers to recruiting young people with cancer to BRIGHTLIGHT: a national cohort study in England.
BMJ Open
Meeting the Digital Technology Needs of Teenagers and Young Adults (TYA) with Cancer: a cross-sectional survey.
Journal of Cancer Survivorship
Experiences and preferences for end of life care for young adults with cancer and their informal carers: a narrative synthesis
Journal of Adolescent and Young Adult Oncology
Optimising a strategy with young people to retain young people in a longitudinal cohort study: BRIGHTLIGHT
Journal of Adolescent and Young Adult Oncology
Being normal, not vulnerable – process evaluation of a two-day conference for teenagers and young people with cancer.
BMJ Open
Improving the identification of cancer in young people: A scoping review.
Expert Review of Quality of Life in Cancer Care
Conference Presentations
The challenges and successes of conducting a complex national longitudinal cohort study of young people with cancer.
BRIGHTLIGHT-TYAC Conference, Leeds, July 6th & 7th
Mapping the landscape… views of professionals from the BRIGHTLIGHT international Delphi survey and beyond
BRIGHTLIGHT-TYAC Conference, Leeds, July 6th & 7th
The development of BRIGHTLIGHT: study background, design and operation
BRIGHTLIGHT-TYAC Conference, Leeds, July 6th & 7th
Participatory research: using board games to guide secondary analysis of big data
RCN International Research Society Conference, Oxford, 6th April
Poster Presentations
Do residential weekends for young people with cancer add value? Interim analysis of a two day residential weekend in the United Kingdom, Find Your Sense of Tumour
The 2nd Global Adolescent and Young Adult Cancer Congress, Atlanta, GA, USA, December 5th-7th
‘Does Patient and Public Involvement (PPI) with young people add value?’ Ten years of PPI, the BRIGHTLIGHT experience
The 2nd Global Adolescent and Young Adult Cancer Congress, Atlanta, GA, USA, December 5th-7th
Decision making and actions driving online information and support seeking for young people with cancer
The 2nd Global Adolescent and Young Adult Cancer Congress, Atlanta, GA, USA, December 5th-7th
Conceptualising age-appropriate care for teenagers and young adults with cancer
The 2nd Global Adolescent and Young Adult Cancer Congress, Atlanta, GA, USA, December 5th-7th
Lets play Twister™! Novel methods to facilitate understanding of complex research methods and generate secondary research hypotheses with young people
The 2nd Global Adolescent and Young Adult Cancer Congress, Atlanta, GA, USA, December 5th-7th
Do residential weekends for young people with cancer add value? Perceptions of carers/significant others
The 2nd Global Adolescent and Young Adult Cancer Congress, Atlanta, GA, USA, December 5th-7th
Information and support needs of carers: Do specialist cancer services for adolescents and young adults add value?
The 2nd Global Adolescent and Young Adult Cancer Congress, Atlanta, GA, USA, December 5th-7th
A qualitative study to understand the barriers to recruiting adolescents and young adults with cancer to BRIGHTLIGHT, a national cohort study
The 2nd Global Adolescent and Young Adult Cancer Congress, Atlanta, GA, USA, December 5th-7th
Four poster presentations:
Understanding the barriers to recruitment of teenagers and young adults with cancer to research
Carers of teenagers and young adults with cancer have unmet information and support needs
The complex process of young people with cancer using online information and support
Carer perspectives of the value of specialist residential weekends for young people with cancer
National Cancer Research Institute Conference, Liverpool, November 6-8th
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British Sarcoma Group Conference, 1st-2nd March
Other Outputs
Online information and support needs for young people with cancer. London: University College London Hospitals NHS Foundation Trust
(Not yet publicly available: a journal publication of these findings is currently under review)
Newsletter – November 2017
March 2017
Journal Publications
Evaluation of Patient-Reported Outcome Protocol Content and Reporting in UK Cancer Clinical Trials: The EPiC study qualitative protocol.
BMJ Open
Diagnostic timeliness in teenagers and young adults with cancer: Cross-sectional findings from the BRIGHTLIGHT Cohort
Lancet Child and Adolescent Health
Sex, body image and relationships: a BRIGHTLIGHT workshop on information and support needs of adolescents and young adults.
Journal of Adolescent and Young Adult Oncology
Conference Presentations
Working on “Quality of Life (QoL)” for sarcoma patients: Development of SAM (Sarcoma Assessment Measure)
8th SPAEN Annual Conference, Milan, Italy, February 2nd-4th
Quality of Life and PROMs Plenary: SAM – a Sarcoma specific QOL tool (Plenary session)
Challenges in developing sarcoma-specific tools (Workshop)
British Sarcoma Group, Birmingham, February 27th
Exploring patient experiences of being diagnosed, treated and living with sarcoma – Phase 1 in developing a sarcoma-specific patient-reported outcome measure.
British Psychosocial Oncology Society Conference, Southampton, March 8-9th
A national collaboration to develop a sarcoma-specific patient report outcome measure: Phase 1 – Exploring patient experiences.
British Sarcoma Group Annual Conference, Birmingham, February 27th
Poster Presentations
“Why do we need SAM”? A narrative review of the impact of sarcoma on psychosocial wellbeing.
British Sarcoma Group Annual Conference, Birmingham, February 27th
A national survey of carers of teenagers and young adults with cancer unmet information and support needs.
British Psychosocial Oncology Society Conference, Southampton, March 8-9th
The value of clinical supervision role in qualitative research practice – case study analysis.
British Psychosocial Oncology Society Conference, Southampton, March 8-9th
Other Outputs
No Documents Found
Journal Publications
No Documents Found
Conference Presentations
No Documents Found
Poster Presentations
No Documents Found
Other Outputs
Infographic presenting an overview of the findings of the ‘Delphi survey’:
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