Presenting Cancer Symptoms and Diagnostic Timeliness Among teenagers and Young Adults: Findings From the BRIGHTLIGHT Cohort

December 27, 2018
Presenting cancer symptoms and diagnostic timeliness among teenagers and young adults: findings from the BRIGHTLIGHT cohort 3rd Global AYA Cancer…
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‘Does That Mean That Cancer Patients Can’t Have Sex?’ – Adolescent and Young Adults’ Support and Information Preferences

December 7, 2018
‘Does that mean that cancer patients can’t have sex?’ – Adolescent and young adults’ support and information preferences 3rd Global…
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Involving Young People in BRIGHTLIGHT From Study Inception to Secondary Data Analysis: Reflections on 10 Years of User Involvement

November 20, 2018
Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: reflections on 10 years of user involvement Research…
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Challenges in Developing Sarcoma-specific Tools

November 17, 2018
Challenges in developing sarcoma-specific tools (workshop). British Sarcoma Group, Birmingham, 27th February
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“No Peppa Pig!”: Conceptualising Age-appropriate Care for Teenagers and Young Adults With Cancer

November 12, 2018
“No Peppa Pig!”: Conceptualising age-appropriate care for teenagers and young adults with cancer RCN International Research Society Conference, Birmingham, 16-18th…
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“I Just Hate My Face. It’s So Different, and Because it Doesn’t Work Properly”– Experiences of Patients With Head and Neck Sarcoma

November 10, 2018
“I just hate my face. It’s so different, and because it doesn’t work properly” – experiences of patients with head…
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SAM – Sarcoma Assessment Measure Phase 1: Patient Experience

November 10, 2018
SAM – Sarcoma Assessment Measure Phase 1: Patient experience Bone Cancer Research Trust Conference, Birmingham, 23rd June
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Experiences of Patients With Bone Cancer: the Role of Illness and Development Trajectories, Healthcare Professionals, Social Support and Coping Strategies

November 7, 2018
Experiences of patients with bone cancer: the role of illness and development trajectories, healthcare professionals, social support and coping strategies…
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Online Information and Support Needs of Young People With Cancer: A Participatory Action Research Study

October 30, 2018
Online information and support needs of young people with cancer: A participatory action research study Adolescent Health, Medicine and Therapeutics
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Conceptualising Age-appropriate Care for Teenagers and Young Adults With Cancer: a Qualitative Mixed Methods Study

October 27, 2018
Conceptualising age-appropriate care for teenagers and young adults with cancer: a qualitative mixed methods study Adolescent Medicine Health and Therapeutics
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There is a Light: BRIGHTLIGHT – Working With Young People to Create Impactful Dissemination

October 25, 2018
There is a Light: BRIGHTLIGHT – working with young people to create impactful dissemination TYAC Annual Conference, Birmingham, September 11th-12th 
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The Support Needs of Young People at the End of Active Cancer Treatment

October 18, 2018
The support needs of young people at the end of active cancer treatment 3rd Global AYA Cancer Congress, Sydney, Australia…
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Healthcare Professional Perceptions of Online Information and Support for Young People With Cancer in the United Kingdom

October 15, 2018
Healthcare professional perceptions of online information and support for young people with cancer in the United Kingdom 3rd Global AYA…
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Issues Experienced and Support Provided to Adolescents and Young Adults at the End of active Treatment for Cancer: A Rapid Review of the Literature

October 10, 2018
Issues experienced and support provided to adolescents and young adults at the end of active treatment for cancer: A rapid…
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Measuring Quality of Life in Young People With Cancer (Invited Presentation)

October 8, 2018
Measuring quality of life in young people with cancer (invited presentation) TYAC Annual Conference, Birmingham, 11-12th September
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The Challenge of Measuring Teenage and Young Adult Experience of Cancer in a Longitudinal Survey

October 7, 2018
The challenge of measuring teenage and young adult experience of cancer in a longitudinal survey (symposium presentation) RCN International Research…
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Sustained Improvements in Self-esteem, Emotional Functioning, Social Functioning and Body Image One Year After Attending the Residential Weekend ‘Find Your Sense of Tumour’

October 7, 2018
Sustained improvements in self-esteem, emotional functioning, social functioning and body image one year after attending the residential weekend ‘Find Your…
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Transitioning Adolescent and Young Adult Cancer Care Research Out of its Adolescence

October 7, 2018
Transitioning Adolescent and Young Adult cancer care research out of its adolescence (Editorial) European Journal of Cancer Care
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Enhancing Accrual to Clinical Trials of Adolescents and Young Adults With Cancer

October 7, 2018
Enhancing accrual to clinical trials of adolescents and young adults with cancer (invited review) Pediatric Blood and Cancer
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Working on “Quality of Life” for Sarcoma Patients: Development of SAM (Sarcoma Assessment Measure)

May 14, 2018
Working on “Quality of Life (QoL)” for sarcoma patients: Development of SAM (Sarcoma Assessment Measure) 8th SPAEN Annual Conference, Milan,…
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