Welcome

BL-TYAC logos

6th & 7th July 2017

Horizon Conference Centre, Leeds

 

We are collaborating with TYAC for their 2017 annual conference in July. The agenda will be circulated shortly but we will be presenting evidence on recruiting young people to research, involving young people in research, unmet needs of carers, cost of specialist care and we will address the big question: Do specialist cancer services for TYA add value? Accompanying the BRIGHTLIGHT presentations are a number of excellent speakers presenting various aspects of evidence based practice. This will also be an opportunity for others to present work on implementing evidence into practice so we can learn from these experiences of what has worked and what hasn’t.

 

Click here to link to the TYAC website page where registration to the BRIGHTLIGHT-TYAC Conference 2017 is now open

 

Brightlight (3)

BRIGHTLIGHT

BRIGHTLIGHT is the overarching name for a collection of research projects designed to answer a single question: Do specialist services for teenagers and young adults add value? The original five studies were funded by the National Institute for Health Research (NIHR) through their Programme Grant for Applied Research funding stream (grant reference RP-PG-1209-10013). These focus on:

The environments in which care is delivered

The competencies of healthcare professionals delivering care

Young people’s experience of care

The cost of care (to the NHS but also to young people and their families)

Developing a metric to quantify specialist care

 

The BRIGHTLIGHT Collaboration involves clinicians and researchers from London, Manchester, Leeds, Birmingham and Southampton. It is supported by the National Cancer Research Institute Teenage and Young Adult Clinical Studies Group (NCRI TYA CSG). The BRIGHTLIGHT Office is based in the Cancer Clinical Trials Unit at University College London Hospitals NHS Foundation Trust.  Central to the BRIGHTLIGHT Collaboration is the involvement of young people:

BRIGHTLIGHT was developed by young people for young people

 

The Young person’s Advisory Panel (YAP) includes 18 young people who have a previous diagnosis of cancer. Some have been involved from the beginning when the project was being developed and some have joined as it has progressed. They play an essential role in advising project coordinators on all aspects of study management. In the future BRIGHTLIGHT will expand to include other projects developed directly from the results of these five studies.  Young people will continue to be integral in the development and management of this work to ensure our ultimate aim is achieved:

To make living with cancer more bearable for young people and to ensure they are able to do the things they wanted to do before they had cancer 

©2017 This website presents independent research funded by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research Programme (Grant Reference Number RP-PG-1209-10013). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.
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