Laura YAP member since

On Christmas Eve 2010 I was diagnosed with stage 4 Hodgkin's lymphoma while in my first term at university. I moved back home for treatment and after 6 months of chemotherapy, a PET scan revealed a second mass in my lung which turned out to be diffuse large B-cell non-Hodgkin's lymhpoma. I had a further 8 months of chemo to get both cancers into remission at the same time and finished with an autologous stem cell transplant in February 2012. I have been in remission for 3 and a half years now! I was too late to join the Brightlight study as a patient but was invited to be a part of the Young Advisory Panel in 2013. I attended a workshop with a group of young cancer patients and we discussed what would be the best ways to recruit more patients onto the study at diagnosis. I really enjoyed the workshop and am still in contact with some of the people I met from it. In 2014 I filmed an information video with another patient to describe what will happen if a patient decides to join the study. It was an informal question and answer video to hopefully encourage others to take part. In 2015 I attended a second workshop to discuss the new Brightlight website and work out correlations between multiple aspects of a young cancer patient's life and what can be done to make the experience a bit less stressful for them. I also attended a smaller workshop the following day where we discussed the impact of cancer on relationships. I really enjoy being a part of the Young Advisory Panel for Brightlight. Not only does it make me feel that I am helping to improve the experience of young cancer patients, it also acts as a great way for me to meet others who have been in a similar situation as me, who really understand what it's like, and we can talk about it all very comfortably!

©2018 This website presents independent research funded by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research Programme (Grant Reference Number RP-PG-1209-10013). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.
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